{"id":5034,"date":"2020-05-01T14:38:03","date_gmt":"2020-05-01T13:38:03","guid":{"rendered":"https:\/\/www.innovationnewsnetwork.com\/?p=5034"},"modified":"2020-05-04T11:06:29","modified_gmt":"2020-05-04T10:06:29","slug":"helping-canadians-with-mps","status":"publish","type":"post","link":"https:\/\/www.innovationnewsnetwork.com\/helping-canadians-with-mps\/5034\/","title":{"rendered":"Helping Canadians with MPS"},"content":{"rendered":"

The Canadian MPS Society<\/a> aims to ensure that MPS and related lysosomal storage disorder patients are provided the best care possible at all times in every aspect of their lives.<\/h2>\n

When families learn that their child has been diagnosed with Mucopolysaccharidosis<\/a> (MPS), a rare, progressive and incurable disease that may potentially take their child\u2019s life, it places on them a heavy emotional, physical and financial burden that few can relate to or understand. Most newly diagnosed families have never even heard of the disease prior to diagnosis and struggle to find adequate information or resources to guide them through the process of seeking treatment. Despite their astounding strength, resilience and optimism, many families struggle to readjust their lives to the overwhelming new reality presented by this disease.<\/p>\n

Early detection of patients continues to be a key issue in the world of MPS<\/a> and related lysosomal storage disorders not only within Canada but on a global scale. The truth is that some families search for many years for the correct diagnosis, which often translates to irreversible damage or even death for patients. It is essential to find these patients and ensure that they live their healthiest life by receiving the care they need as early as possible.<\/p>\n

The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society), founded in 1984, serves Canadians affected by MPS and related diseases through support, education, advocacy and by advancing research. The Canadian MPS Society helps ease the burden by directing families to important sources of information, research and medical help, and by connecting them with other families experiencing similar situations to expand their network of support. We also provide financial support to families through our Family Assistance Program \u2013 to date, we have funded over $150,000 (~\u20ac138,000) in grants to offset the many extraordinary costs incurred with a diagnosis, such as travel to treatment facilities, medical aides and wheelchair accessible home remodelling.<\/p>\n

Empowering MPS patients<\/h3>\n

Quite often, the Canadian MPS Society is the first point of contact for external support outside treating physicians and caregivers. We are a network of caring staff, volunteers, member families, medical professionals and healthcare providers that understand the complexities of these diseases and offer supports that can serve as a lifeline for affected families. We strive to empower patients and families with educational materials, support networks, financial assistance and comfort in knowing that they are not alone in their journey and that we are here to help, in every way that we can.<\/p>\n

Canadian MPS Society\u2019s programs and services include:<\/p>\n